A demonstration of what can be accomplished with breathing exercises (respiratory therapy) and electronic wind instruments.
See the Explanation page and download the sheet music at our Download page!
Hallo. My name is Avram and I am 17 years of age. I have Duchenne's Muscular Dystrophy.
Recently I had an operation on my back. They put a metal rod in my back to keep me growing upright and to prevent my lungs from getting squashed. I was diagnosed when I was 6 years old. Even before then my parents thought something was wrong. They had read the symptoms in a book. At that stage I could still walk, a few years later I got a wheelchair. First a manual one and then an electric wheelchair. From the age of 12 I have been going to a special school. I am in highschool.
When I was in 2nd year I got Breathing Exercises from Ruud. I enjoyed it straight away. I was still able to play with both hands then. After a year I was given an instrument on loan so I could play at home also. Initially I wasn't playing all that much, but recently I have been playing a lot more. After talking to Ruud I have decided to change to playing one- handed. This is going very well, thanks to my 'focal'. A 'focal' is an electronically adjustable armrest (see photo). Eating, computer work, writing, it is all much easier with a focal. I enjoy learning new songs. There are not many things left I can do, but this is one thing I can do.
Avram uses a dynamic armrest, the 'top' of the 'FOCAL' brand.
The WX5 is mounted on a high microphone stand.
He uses a home made mount to put the WX5 on a microphone stand.
